I wanted to post an update for our fam and friends. Josh has gotten emails wanting an update but he's so busy trying to make up school and work that he can't even get on the computer to do it and this IS something I can do for him! I have a wonderful, devoted, and loving husband and children.
I had been doing spectacular until a few weeks ago. I could tell my right kidney wan't draining right. I saw my Urologist and told him how I felt but that otherwise I felt better than I had in a year! Then Kelly and I went shopping the same day for 5 hours at the mall. I woke up the next day thinking I was tired from shopping. After a few days of feeling like I had the flu or tiredness I called my doc to see what the urine culture showed. Nurse said there was a lab mix-up and it had gotten thrown out! I was like "What?", and why does this seem to always happen to me :-) I told her that I was feeling pretty sick, I knew something wasn't "right". She said my doc was off until Monday (5 days away). We redid the test and I waited... Over the weekend I felt terribly ill. By Monday, I knew something was really wrong. I called my doc and couldn't get thru for hours. I called my family doc who was able to look up my test results and he said they were not good and to go straight to Lutheran Hospital in Ft. Wayne. I refused: I didn't want to leave my kids....
Until, my husband came home in the middle of the day and told me he was praying for me and that I was supposed to go to the ER, he felt like God was telling him that my life depended on it. How can you argue with that? LOL
We got there and my BP was 199/114. I was tachacardyia. They bumped me ahead of the other patients waiting. A doc came in and said I was staying and to feed Gabe one last time because I was really sick and they needed to medicate fast. I had no idea things were THAT bad until that moment.
I was in the hospital all that week. My BP kept spiking. I was diagnosed with pylonephritis again. It is psudemonos AGAIN... I am home now on a PICC line. I do antibiotic infusions 3 times a day. They are making me so sick. Some days I can barely eat. I am on home health care. We are praying so hard that the treatments work this time. I will finish my 2 week round on Monday. I see the doc that day and we will wait 3 days and retest to see if the bug is gone. if its gone, we are done. If its not we retreat with stronger medications.....
Its a very rare bug to be in a kidney. And once it get there, it doesn't want to leave. The x-rays etc have shown that I have a birth defect. My ureters that go from my kidney to bladder are structurlaly too small. This isn't helping.
Gabe is finally taking a bottle. Poor Josh had to literally drip the formula in his mouth the first 3 days. He is not minding it so much now but his tummy isn't liking it. He is so confused... I feel so sorry for him. He was an on demand nurser, had never really taken a pacifier. Now when I try to hold him, he gets mad because he can smell the milk but can't seem to understand why I won't feed him. Thankfully, to the docs suprise, my body is still making a lot of milk. I am pumping and dumping for now to keep up my supply. Hopefully this will be over soon so we can get back to nursing.
The other kids are doing great. I sure missed them while I was gone and vice versa. We took spring break this past week to rest. Josh only has 5 weeks of school. This is a really bad time for his wife to be sick. Sorry hun!
After my appt on Monday we will go from there. We are hopeful the kidney will drain once the infection is cleared. If not, I will need a kidney tube again. Pseudemonas in the kidney is usually from a contaminated catheter. Thats frustrating to know this is propbably all caused from a hospital mistake.... But God knows all and will take care of me, of that I am SURE!
We so much appreciate everyones help, prayers, emails, phone calls, meals, etc. In a time like this, when one day life is going absolutely perfect, then the next its turned upside down.. its so nice to feel loved.
And to my mommy~ Once again, you are so wonderful to me. Thanks for taking care of all of us. I seriously don't know what I would do without you!
Andra